Dementia Action Week (3)

Enabling people living with dementia to lead research

Published: 16/05/2022

Author: Research in Practice

To support Dementia Action Week we have brought together a range of Research in Practice resources to support working with people living with dementia.

It is important for people to have their voices heard and to be engaged and involved in the issues that are crucial to them. However, the gap between research and real life experiences is often exacerbated by a lack of input from people with lived experience into the design and delivery of services.

Drawing on the Dementia Enquirers Project, our recorded webinar explores how people living with dementia can go beyond ‘patient and public involvement' and be ‘in the driving seat’ of research. In the webinar, we discuss the benefits of this approach, the barriers people encounter and how people can be supported without being taken over.

In addition, our toolkit provides practical methods and background information to help you think about the involvement of people living with dementia, particularly in your service or workplace.

View the webinar.

View the Practice Tool.

To support work in this area the webinar and Practice tool will be open access until 23 May.

Working with people living with dementia

Dementia Action Week (2)

Practitioners in adult social care have an important role in ensuring that people living with dementia and the people close to them receive good care.

Carers of people living with dementia

Dementia Action Week (1)

Many people living with dementia rely on support and care from family members and friends. Everyone's experience of caring will be unique to them and the person they care for, particularly in the context of dementia.